Guys, I Have Brain Tumors Jensen Karp

The doctor said, in his most somber tone, “You have three brain tumors, but I’m really only concerned with looking at one of them. The other two seem insignificant.”

“Like Destiny’s Child?” I somberly said while mimicking his tone, proving I have no idea how serious things just got.

No laugh.

I don’t blame myself for making light of what quickly became a very critical medical moment where my whole life would flash before my eyes, I still blame myself for thinking the doctor would understand the complexities of Destiny’s Child membership in the 2000s.

In 2009, when I woke up with a ringing in my ear that didn’t disappear for 6 hours, I did what any logical Jewish person would do – assumed I was dying and made an urgent doctor’s appointment. When my doctor explained a shot of cortisone would ease what he thought was just inflammation (which it did), I sighed in relief and awaited the next small physical ailment that would throw me into a tailspin (a month earlier I Googled “rickets” when I thought my bones seemed tired). Knowing my tendency towards hypochondria and my overall state of panic, my doctor was smart enough to suggest that the ear ringing might be a blessing, since it allowed my insurance company to pay for an MRI/brain scan, which he explained is always a good thing. “Why not?” he asked. “It’s available to you and they’re usually expensive.” And although this theory would be awful when discussing many things (drugs, mail order brides, pet mountain lions), I understood the logic and went with it.

I won’t complain (I will), but an MRI is basically like having the world’s worst Dubstep DJ play inside of your ear, all while you can’t escape. It’s like if Skrillex held you hostage in a large test tube. It’s not fun, but tests never are and I knew this going in. I assumed the procedure was purely because everyone loves a deal and my insurance company thinks a ringing ear deserves a coupon, so I walked out of the office like it was any other insignificant check-up and went back to my everyday life.

When a nurse called me two days later to let me know the doctor wanted to go over the results, I halfheartedly listened and said, “Sure, put him through.” She explained he was very busy today and needed to set up a time I could come into the office. This time, like a clueless 3rd grader who keeps asking questions about the stork even after he watches porno, I reasoned with her, missing the point completely. “Well, if he’s so busy, let’s make it even easier by doing it over the phone,” I suggested without a clue. Her voice got lower, to a pitch that quickly unveiled that things were about to suck, and the words “Listen, you need to come in,” rang in my ear over and over, making me wish I could get another quick cortisone, or black tar heroin, shot.

I knew this wasn’t good. He set up the appointment for 6 PM, knowing most of the nurses would be leaving for the day, allowing a 28-year-old man to cry in peace without the worry of seeming feminine. I readied myself for a death sentence and watched the doctor’s mouth move as he explained the three “white spots” found on my midbrain, a central section in charge of involuntary actions like sleeping, walking and alertness. So, no big deal, just totally ESSENTIAL ACTIONS NEEDED TO LIVE. It all got rather blurry at this point, but I found out quickly that they were inoperable, since their placement assured us, if we got too close, I’d become a vegetable. He suggested it was time to see a neurologist, almost like I just finished Super Mario Bros. 2 and it was time to play the harder one where he dresses like a squirrel. But no matter what he said, I heard it was time to go home and decide what I wanted on my tombstone (I went with “Jensen Karp: Someone call David Blaine please”).

For the next two years, a lot of theories flew around, but MRIs every 3 months and a brutal spinal tap had a lot of doctors concluding that the white spots were lesions, each marking early signs of Multiple sclerosis. You could only imagine the Richard Lewis-esque spirals I fell into, experiencing panic attacks every time I remembered that this was all happening purely because I had ringing in my ear once. Doctors warned me, if I woke up one day and saw two of everything, I was to hurry back to the hospital, as if I would cook a quick breakfast, watch Kathie Lee and Hoda’s hour of the Today show, then jog over, all while seeing double. I was scared shitless and lived this way for quite some time.

About 6 months ago, things changed though, and that’s when my ill-timed Destiny’s Child joke bombed. After years of tests, comparing results and watching the white spots sit stagnant, my MRI technician and doctor diagnosed me with brain tumors, which in all honesty, at the time, was both the worst case scenario AND the best case scenario.

My family is riddled with cancer. In my immediate family, we have just under a dozen cases, and keep in mind – I’m an only child. My father had died a year earlier from his second bout with lung cancer, so if your office has a Cancer Pool, I’m a good pick (also you work with jerks). I’m a serious candidate and I know it. My family is to cancer what the Kardashians are to black boyfriends. But the doctor convinced me to look at cancer in two different ways – sure, it can possibly kill you in 5 days flat, but it can also stay undeveloped your entire life, sitting there quietly, never affecting any aspect of your existence. He and the Brain Trust board of directors at Cedars Sinai (which exists) all seemed to agree my spots seem harmless. Although one assh**e kept MS on the table, things are looking pretty satisfactory for this guy living with brain tumors. My doctor even thinks these might be juvenile tumors that I had as a kid, that stopped developing in the 2000s (like Papa Roach), but because I’ve never had an MRI before (or a coupon to afford it), we’ll never know. But thank God we didn’t catch it when I was young, because my mother would’ve never let me leave the house, forced me to wear a helmet and the only interaction I would’ve had was when I politely asked someone to inflate my bubble again.

We’ll never be able to test the tumors for cancer, because it’s location doesn’t allow for a biopsy, but I’ll get scanned every three months, looking for growth or multiplication. And if it does do either of those things eventually, or I do wake up and the world looks like I’m the star of TRON, then we’ll radiate them and I’ll get a shit ton of Edible Arrangements sent to my house.

It’s been an insane few years. I was always a fan of Nip/Tuck, but I never wanted to live in an episode. I actually kept this whole story to myself basically until the last few months when doctors started to seem optimistic that the tumors aren’t growing, and may never do so. And now I kinda just want to tell everyone all the things I’ve learned.

Like, get an MRI if your insurance will help with the bill. I just met someone else in my age bracket who had a tumor removed from his brain and he believes neurology is the new dentistry, where the more check-ups and x-rays we get, the better off we could be for the future. Having a frame of reference, even just one other snapshot, would’ve saved me a lot of pain and anguish.

Also, don’t trust cell phones. I know it’s not for sure, and some studies show no correlation, but remember, people were smoking on airplanes 30 years ago. And I don’t even want to think about lobbyists involved in these studies. Let’s just agree on this -  having a glowing, roaming, sometimes steamingly hot device against your ear can’t be good, right? The cell phone is still young and EVERY doctor I’ve visited for my tumors has said, “I don’t put it up to my ear, so I suggest you don’t either.” Also, Bluetooth earpieces aren’t any better, not to mention it makes you look like an awful human being. And I don’t mean to just come down on cell phones because our current world is filled with possible contamination, pollution and new technologies that basically can cause anything. I don’t mean to sound like Howie Mandel here, but let’s just stay aware of our surroundings and it’s possible health effects.

Truthfully, it all comes down to awareness. The more we talk about our changing world and how it may, or may not, be affecting our brains, the better off we’ll be. Just knowing that tumors have been popping up more frequently in younger patients is worth all of us investing some research. Our environment isn’t getting any simpler, so let’s just keep our brains in the discussion.

After my last doctor visit, my mom excitedly listened to me explain the newest optimistic revelations. I went on about how he thinks these tumors could be done growing and in turn we’d have nothing worry about. She cried, excited, letting me know she prayed and knew it would work out. She even went as far to suggest these juvenile tumors may have actually helped me as a kid.

“Maybe these tumors are what make you so smart, Jensen,” my mom prophesized. “You were always gifted. They wanted to move you to the gifted program. They always said you were the real bright spot and everyone around you just wasn’t as good.”

“Like Destiny’s Child?” I asked my Mom.

No laugh.

Featured image by Logan Fitzpatrick

comments

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  1. I think I’m in love… My Jewish parents, bubbie and zayde can all die happy now that I’ve found a hypochondriac (shocking) Jewish man tha can reference Destiny’s Child and appreciate the value of a coupon (again, shocking). Marry me?

  2. what an awesome article! I love your optimism and sense of humor about the whole issue.
    But being a hypochondriac and only 2nd gen non-Jew (from a long ancestral line of Jews) I am now convinced that I have brain tumors and am hoping for an ear ringing so I can get an insured MRI. Also using this as an excuse to never talk on the phone again.
    Happy health!

  3. Best article – and far and away funniest – I’ve read so far hear on the Giggles (way too much twee cutesy-ness and trying-too-hard crap usually). You have an amazing strength and sense of humor, thank you for sharing it with us. Wishing you many more years of good health and witty music references!

  4. It was so nice reading this. I’m 23 and I was diagnosed with cancer almost a year ago. Just like Alexandra Longo I had a spine tumor and I had to do quimotherapy and two surgeries. I’m cancer free now but still recieving some drugs to make sure it won’t come back. It’s so nice to find people like you who can see the bright side of this kind of experience. I can only say thank you for talking about this. I really think you are helping turn this into a subject we can all talk about and not keep seing it as a tabu. I’m really happy you are ok now. :) Greetings from Chile!

  5. Awesome story. Perfect timing with Thanksgiving tomorrow! It’s great to see you are so calm and cool about it all. What an awesome person :) Good luck to you, dude!

  6. Really loved this article. I’m 23 and last year around this time I was diagnosed with cancer, because they found tumors in my spine… tumors that apparently have been growing for yeeeeeears. The kind of cancer I have (Ependymoma) is super rare and pediatric and usually causes brain tumors, so I totally commiserate. And your comment about the Dupstep MRI machine is SPOT ON. I liken it to being trapped in Tron.

  7. Fantastic article! I have so much respect for anyone who can take a horrible situation and find the humor in it! I hope everything continues to go well! Good luck to you

  8. Tracy! Thanks for reading it and letting me know about your sister. Happy to hear her situation seems harmless too. It’s all a little crazy. And thanks to everyone contributing and reading my story.

  9. What an amazing article. You nailed it – made me think and made me laugh at the same time. Thank you for writing this. For people who know someone who has had cancer, this is a great perspective.

  10. Thank you so much for your words, Jensen. My sister has had a benign brain tumor for years and I am a total hypochondriac, so I fully appreciate this. I am sorry you have had to go through this all, but I am so glad that they are not growing or changing. You are just as funny as I remember :). I hope you are doing well. Take care of yourself and thank you again for sharing your story.

  11. Wow, can’t believe all these people have had brain tumors, all at such young ages. The best part about this article getting some attention has been hearing from so many people who have survived their diagnosis. Thank you Sophia, Robert, and Peter for telling your stories on here as well. I suggest we use our tumors for good and all learn how to communicate telepathically at some point. No rush.

  12. Had a bran tumor the size of a golf ball removed about 4 years ago, I was starting to go blind from it and had massive headaches. They went up my nostrils and removed most of it and the headaches went away and my sight was restored. I still take meds to keep what was left in check . Thank you for your story, its nice to relate to someone who has been through the worrying, the pain, yhe not knowing. Thanks again…as some of my friends call me, “Brain Tumor Bob”.

  13. Wow! That really was an essay…sorry guys! >_<

  14. This article is so good! Made me laugh, and shed a tear…or two.
    When I was just 14 years old I was diagnosed with a brain tumor, an acoustic neuroma, which grows in the ear canal and is very close to the facial nerve.
    I started off getting numbness around my lip on the right side of my face which gradually spread to the whole of the right side of my face, throughout this time I was also getting severe headaches and sharp pains in my right ear along with my hearing going muffled at the most random times. I went to the Doctor who told me to go to a Dentist…G-d knows why though! But I demanded an MRI scan (thankfully we have NHS here in England).
    I had already prepared myself for the worst case scenario and so when I found out I wasn’t at all that shocked. When I went to see the surgeon a few weeks later he informed me that the tumour was very large (5cm at the time) and was only usual in women over 30, and because of the placement and the size of it I probably shouldn’t have even been walking due to the tumour affecting balance. Luckily my tumour was not cancerous and was operable, I remember sitting down face to face with the surgeon and hearing him say ‘If you do not have surgery to remove the tumour you will die, and you won’t have much longer…If you do have the surgery there is around a 50/50 chance.’ Not the best of things to hear someone say at all really, but my initial thoughts were that I was going to be okay, and if anything did happen I wouldn’t notice…I would be in surgery under anaesthetic after all, I mean, everyone’s life has to end at some point.
    Obviously I made it through – otherwise I wouldn’t be typing this essay of a comment – of course there were some complications and I was told they nearly did lose me as I had lost a lot of blood; I do still have some problems such as being deaf in my right ear, balance problems – which can often make me walk like I’m drunk out of my mind, as well as some facial paralysis on the right side which was caused by the tumour growing onto my facial nerve. I have been having annual MRI scans to keep an eye on things as I have told I have another small mass on the other side but my scans are now every 3 years so I must be okay!
    All that matters really though is that I’ve made it through and have become much stronger as a person. You honestly don’t realise matters like this until it happens to either yourself or someone that you know. More people need to be made more aware of tumours!
    There is also a large history of cancer in my family; my Grandfather currently has it for either the second or third time and my Auntie sadly passed away a few months ago after having it I think 5 times.
    Thank you for the kind words in your article and I am glad that you’re okay! :)

  15. I found that I had a brain tumor when I was 17, and it was completely by surprise. I was diagnosed with ADHD, and my psychiatrist suggested seeing a neurologist to see if there was anything physically wrong with me. The neurologist suggested an MRI, and the MRI said, “You have a tumor.” From what I was told, it was pretty small, it was not really having an affect on anything, and was operable. My family and I decided to have it removed and it was later that year. They took out most of it and what was left actually shrunk away over the next few years. The whole experience was pretty surreal, and made me realize how common something like a tumor can be. I remember my neurologist telling me that many teens have it and never find out because it doesn’t cause any problems.

    Whenever someone asks me about it, I always bring up the fact of it being common. CLICHE ALERT: I just never thought it could be me, and yet it happened. I’ve hopefully spread some awareness about it, and it’s good to hear that awareness is spreading more and more.

    Glad you’re alright, sir.

  16. as a fellow jew with hypochondria, i am on the floor laughing.

  17. This is an awesome article, Jensen! I have a friend with brain tumors, a cancer-riddled family, and precancerous cells myself (along with 3 other “invisible” diseases – epilepsy, anxiety and fibromyalgia.) Hypochondria isn’t on the list, but I sure am aware of my body! I’ve got myself under a microscope, and ususally know I’m sick before the doctors can tell. Lab results? I don’t need no stinkin’ lab results. ;) So glad to hear those tumors are more Destiny’s Child, and less Green Day.

    Anonymous | 11/22/2011 12:11 pm
  18. Thanks for reading the article, commenters! I wanted to put SPOILER ALERT: I live! as the second part of the title pretty badly, but I guess it’s assumed. Thanks for all the kind words and please pass along the message of brain tumor awareness.

  19. Thanks for writing this, dude. I like your style! Glad to hear the tumors aren’t growing. :)

  20. What a good story…

    my comment to the protagonist: sad thing you’ve got pwned! :D well at least you left a mark…And its a quirky one i guess :)

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